I have thought and thought about what I wanted to say to you for months, but truth be told, I was too scared to write it down - as if writing down your story would make it not real. It seems absolutely unfathomable to me that in just a few weeks I will be holding you in my arms, … [Read more...]
Restarting My Hard Drive
In short, my body broke in 2011. My hard drive crashed, my wires got crossed, my crayon box lost the primary colors... you get the idea. This blog started as the story of my trip to the Mayo Clinic and how I planned on regaining my life in 2012. Turns out I did regain my life, but not exactly as I planned. This is the story of medical drama, heartbreak, much laughter, and an abundance of gratitude.
Using Passion to Find Your Purpose
In February, we are surrounded by images of passion and thoughts of love – bright red hearts, cupid balloons and chocolate roses are practically overflowing out of every aisle at the grocery store. But the truth is, passion can come in many forms, and in this month’s special … [Read more...]
To Love and Be Loved
I was raised in an interfaith home. I don’t mention this as an aside. I mention it because it is one of the cornerstones of my childhood. And that’s saying something, as I was lucky enough to have a pretty damn amazing childhood. Not only are my parents different … [Read more...]
Addressing My Elephant
I’d like to start by addressing the elephant in the room: I’m ashamed to write this post. Mortified, really. I thought about not writing it at all. Or writing it but not posting it. But, that felt fake and false and a little bit like lying. When I started writing this … [Read more...]
The Next Chapter
Hello, 2017. Hard to believe you're here. Not going to lie, I am more wary of what you have to offer than I have ever been in my entire life. And yet...here we are. I have been trying to write out my thoughts for weeks now - months really, but it has felt like the most … [Read more...]
The In-Between
Hello, blank page. I know, it's been awhile. I have both desperately craved and strictly avoided you, knowing I needed to write and terrified of what may come out. What if it's all the same? What do I do if I come here to write only to acknowledge that nothing has changed … [Read more...]
Still Looking for that Hidden Camera…
Have you ever had one of those moments where all you can do is wonder why no one is with you to see what you're seeing? Ya know, the kind where you look left…look right…and expect to find out that my girl Ellen Degeneres is watching you on a hidden camera? Representing the … [Read more...]
This Just In: Life Ain’t Stable
Oh hey, friends. It's been quite awhile. I've missed you. And writing. And this blog. Life took a turn for the crazy, but here we are yet again. After the big genetic showdown, my plan was to take a few weeks away from the medical world to just be. There are a lot of … [Read more...]
The Missing Piece
I have always wondered what the moment would be like. When after years of unanswered questions, false hope, and dead-ends, I’d have a definitive diagnosis. I wondered what emotion I would feel first. Relief? Joy? Confusion? Probably a little bit of everything, I … [Read more...]
She Used to be Mine
I had almost finished a post when I heard the song. My musical idol, Sara Bareilles, recently composed a new musical, "Waitress," (think stage adaptation of the movie with Keri Russell) and the first single from the musical was just released. "She Used to Be Mine” stopped … [Read more...]
We do not stop playing because we grow old. We grow old because we stop playing. 