Oh friends, I have missed you.
It has been far too long, and there is so much to say!
Many blog posts to come, but for now, I’ll start where I left off.
Remember that last blog post, with the theme of “Try Again?”
Super. Keep that in mind, it will come in handy.
Also, do you remember those plastic balls for hamsters and gerbils and other such rodent-sized class pets?
Ya know, the ones that had a hole to insert the hamster, that when closed allowed your furry friend to cruise around the first floor?
The best part about the ball of wonder was the endless amusement in watching the poor hamster roll around, see something he wanted, and SMACK! realize he couldn’t quite get there in a pink plastic sphere the size of a basketball.
And, bless his sweet little hamster heart, he would try over and over and over again.
I fear I have become a hamster.
I stopped treatment in June.
Yes, I realize it is August. Roll with it
[Get it….ROLL with it…]
It really wasn’t much of a conversation, more of looks passed back and forth across the table as my doctor and I both knew — it had been too long, it wasn’t working.
I was 6.5 months into a 9 month program, and instead of improvement or at least equilibrium, I have new symptoms and exacerbated “old faithfuls.” Especially questionable given that you are supposed to feel 100% healed for the last 3 months. Oops.
So, we both knew. We knew the treatment wasn’t working, and we knew in that glance across the table that we are dealing with more than “just” tick borne illness.
We are still missing a big piece of the puzzle.
I think I’ve known for a while, back in the deep, dark recesses of my heart, but I wasn’t quite ready to bring it to the light. Odd as this may sound, the tick borne illness offered me something that I had previously shut out as a possibility — treatment. Recovery.
All of a sudden I went from a yogi in tree pose on a mountain, to a pony galloping in circles around the ring.
Sometimes when I look back on my blog, I feel like a bit of a joke.
I’m off to Mayo! I’m going to find a cure!…Wow, this is proving to be a bit harder than I thought…So it turns out I just need to relearn how to eat…False alarm — I don’t need to relearn how to eat…Ok, this is my life, let’s do this…Hold up — let’s remove a few organs, and THEN I will be well!…Hmm, not working out so well. Down a few organs, still no change…Ok, time for acceptance. I’m moving on! Life is grand!…But wait! You have a tick borne illness! We can treat this!…Aaaaand treatment is trying to kill me….Oh, and odd that I have all of these new symptoms too, must be from my treatment…Or maybe not from my treatment, or even from a tick borne illness at all??
Open pink ball, insert hamster, sprint in one direction, run into wall.
If I’m not in a giant hamster ball, then I am most certainly on The Truman Show.
I MUST be a character in a movie who doesn’t realize that the entire world is watching her and waiting for her to put the pieces together.
Ya know, like a reaaaaaaally drawn out sci-fi medical mystery thriller.
With one main character.
About 23,090 supporting characters.
And scores of cookies.
So I’m back to trying again. I’m back to multiple medical “dates” per week. I’m back to gently suggesting the medical assistant take a seat before taking my medical history, as I slowly slide over my 4 inch binder of medical records and watch the eyes bulge out of his/her head. I’m back to the land of the bizarre.
On the plus side, I am now the topic of dinner table conversation, seeing as my neurologist and hematologist are married. I think I might start providing them with meals. If they are going to talk about me, I might as well be sure they are properly fueled, yes? I am a Certified Health Coach, after all. Greens for everyone!
I want to tell you that I jumped into this most recent search with much pep and gusto, but that would be a lie.
The truth is that I jumped into it much like my poor hamster fell down the flight of stairs — somewhat accidentally and with much exasperation.
I’ve done this whole search thing. Many times. Yet it seems that every time I set my soul to live and let live and say hasta la vista to the medical world, a new organ breaks and I’m back on the medical goose chase.
Frankly, it can be a wee bit exhausting.
But the thing is, I guess it’s kind of like an epic road trip, or a Bear Gryll’s adventure series. You do hard things and go as far as you can, and then you take a little break to reboot and refuel. Sooner or later, a new challenge surfaces and you are back at it — forging ahead and avoiding obstacles.
And although I may often wonder just where I am headed, this road trip is certainly not lacking in excitement. I have to believe that I’m on this path for a reason.
I just have to.
And while it has certainly taken an adjustment here or there, I know it is a true gift it is to be able to carry on, full speed ahead, and continue on this grand adventure of life.
On the other hand, blazing my adventurous path while safely enclosed in a giant pink bubble might not be such a bad idea…